Cerebral palsy (CP) refers to a group of neurological disorders that appear in infancy or early childhood and permanently affect body movement and muscle coordination. CP is caused by damage to or abnormalities inside the developing brain either before, during, or after birth that disrupt the brain’s ability to control movement and maintain posture and balance. The term cerebral refers to the brain; palsy refers to the loss or impairment of motor function.
Children with CP exhibit a wide variety of symptoms, including:
- Lack of muscle coordination when performing voluntary movements (ataxia)
- Stiff or tight muscles and exaggerated reflexes (spasticity)
- Weakness in one or more arm or leg
- Walking on the toes, a crouched gait, or a “scissored” gait
- Variations in muscle tone, either too stiff or too floppy
- Shaking (tremor) or random involuntary movements
- Delays in reaching motor skill milestones
- Difficulty with precise movements such as writing or buttoning a shirt
Books for ParentsCerebral Palsy: A Complete Guide for Caregiving Spastic Diplegia Bilateral Cerebral Palsy Children with Cerebral Palsy: A Parent’s Guide |
Online Support CommunitiesFacebook Groups: Mommies of Miracles for parent-led discussions. An active forum for sharing experiences and advice. |
The following resources may help individuals, families, friends, and caregivers of people living with cerebral palsy: Cerebral Palsy Research Network Children’s Hemiplegia and Stroke Association Child Neurology Foundation Easter Seals Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Pathways.org United Cerebral Palsy (UCP)Where can I find more information about cerebral palsy?
Cerebral Palsy Foundation
Phone: 212-520-1686
Offers resources for families, including educational materials, research updates, and support for improving quality of life for children with cerebral palsy.
Provides access to research, clinical trial information, and community resources to help parents stay informed about advancements in cerebral palsy care.
Supports families with resources like parent guides, support groups, and information on hemiplegia and pediatric stroke related to cerebral palsy.
Phone: 612-928-6325
Offers tools like a disorder directory and family support services to help parents navigate neurological conditions including cerebral palsy.
Phone: 800-221-6827
Provides services and resources for families, including therapy programs and advocacy for children with cerebral palsy and other disabilities.March of Dimes
Phone: 888-663-4637
Offers educational resources and support for parents, focusing on prematurity and birth complications that can lead to cerebral palsy.
Provides detailed information on cerebral palsy, including causes, treatments, and research updates for parents seeking scientific insights.
Phone: 800-955-2445
Features free tools like developmental milestone charts and videos to help parents support their child’s growth and motor skills.
Phone: 202-776-0406 or 800-872-5827
Offers a network of affiliates providing resources, advocacy, and support services tailored to families of children with cerebral palsy.
Our children with Cerebral Palsy
* Listed children often have multiple diagnoses and attention should be given to the specific information in each child’s profile.
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