Celiac disease is a serious autoimmune disease that occurs in genetically predisposed people where the ingestion of gluten leads to damage in the small intestine. It is estimated to affect 1 in 100 people worldwide, but only about 30% are properly diagnosed.
When people with celiac disease eat gluten (a protein found in wheat, rye, and barley), their body mounts an immune response that attacks the small intestine. These attacks lead to damage on the villi, small fingerlike projections that line the small intestine, that promote nutrient absorption. When the villi get damaged, nutrients cannot be absorbed properly into the body.
Celiac disease is hereditary, meaning that it runs in families. People with a first-degree relative with celiac disease (parent, child, sibling) have a 1 in 10 risk of developing celiac disease.
Celiac disease can develop at any age after people start consuming gluten. Left untreated, celiac disease can lead to additional serious health problems.
What is Celiac Disease?
Back-to-School and 504 Plan Guide
Section 504 of the Rehabilitation Act of 1973 promises equal opportunity for Americans with disabilities. It guarantees accommodations in federally-funded programs and services. You can file a 504 Plan in public schools to arrange accommodations for your child with celiac disease.
Get the Back-to-School and 504 Plan Guide
Books Parents of Children with Celiac DiseaseKids with Celiac Disease by Danna Korn Eating Gluten-Free with Emily by Bonnie J. Kruszka The Celiac Kid by Stephanie Skolmoski The First Year: Celiac Disease and Living Gluten-Free by Jules E. Dowler Shepard Celiac Disease For Dummies by Ian Blumer, MD, and Sheila Crowe, MD Real Life with Celiac Disease by Melinda Dennis and Daniel A. Leffler Gluten-Free Friends: An Activity Book for Kids by Nancy Patin Falini Mommy, What Is Celiac Disease? by Katie Chalmers |
National Celiac Association HealthyChildren.org (American Academy of Pediatrics) National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
MORE INFORMATION
KidsHealth by Nemours
Provides a parent guide on celiac disease, covering how to manage symptoms, adapt to a gluten-free diet, and communicate with schools and caregivers.
Children’s National Hospital – Celiac Disease Program
Features a family resource hub with educational videos, a gluten-free diet app, and the “Celiac Disease Digest” newsletter to help parents manage their child’s condition.
Runs “Raising Our Celiac Kids (ROCK),” a program offering support for parents and kids, plus a resource center with practical tips for gluten-free living.Nationwide Children’s Hospital – Celiac Disease Center
Provides resources like FAQs, videos from Dr. Ivor Hill on symptoms and treatment, and guidance for parents adjusting to a gluten-free lifestyle for their child.
Offers parent-friendly articles on celiac disease in kids and teens, including symptom recognition and dietary management tips from pediatric experts.
Delivers detailed info on celiac disease, including causes, symptoms, and treatment, with a focus on helping parents understand the science behind their child’s needs.
Our children with Celiac Disease
* Listed children often have multiple diagnoses and attention should be given to the specific information in each child’s profile.
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