Girl, Age: 7
Region: Eastern Europe
Primary Diagnosis: Congenital Heart Defect
Cornelia de Lange syndrome. Congenital heart malformation – high-degree pulmonary stenosis, atrial septal defect II type; Condition following balloon angiovalvuloplasty;
Listed: Mar 2023
Family history: mother with thalassemia minor
Josie currently lives in a group home. She is very small for her age. She can turn from her back to her stomach. She tracks objects with her eyes and reacts with smiles and positive movements/expressions when an adult interact with her.
Update 9/2024:
From a staff member who visited her: “I see some progress from the last time I visited her in October of 2023. She can hold the bottle by herself while eating or drinking from it. She can keep herself upright for quite a long time. She is trying to say syllables. The little girl is an extremely gentle, fragile creature who needs lots of love and cuddles (which are definitely in short supply at the moment), activities and the chance to find her forever family.”
