Condition after herpes-viral encephalitis. Hepatitis caused by CMV. Hypotrophy. Hydrocephaly – of mild degree. Congenital dyserythropoietic anemia. Delayed neuro-psychological development.
Emma was recently transferred to a group home where she can receive more specialized care to help her continue to develop and receive appropriate medical care. She is receiving monthly blood transfusions at this time for her anemia. She had surgery to correct clubbed feet in 2020. She can sit unassisted, stand next to a stable support, walk around fixed supports and walk while holding the hand of an adult. Videos from May 2021 show Emma playing with an electronic toy. She is pushing the button to get the toy to make a sound. Her fine motor skills are not well-developed at this time, due to her spasticity. Emma responds positively to adults and other children. She smiles and laughs when adults interact with her.
The agency staff member who visited her during March of 2024, says the following:
Emma is a sweet little girl who needs a loving and supportive family environment. During my brief visit, the child was constantly on the move except for the brief moments when she played with a particular toy or during her brief moments of protest. At the present time, the child’s needs are met at a basic level, with particular attention paid to her medical needs. The lack of systematic and in-depth work of specialists (such as a rehabilitator, occupational therapist, special pedagogue, speech therapist and others) is felt, which the institution currently does not have the opportunity to provide. By falling into a suitable loving family, receiving more attention and adequate care and activities, Emma could show her potential to a greater extent.
Update 8/2024
Special needs: low birth weight – 1800 gr; condition after herpes viral encephalitis; condition after hepatitis caused by CMV; congenital dyserythropoietic anemia; hydrocephalus – mild degree; infantile cerebral palsy – spastic quadriparesis; symptomatic epilepsy; delayed neuropsychological development
Therapy: Convulex 4+4+4 ml., Clonarex 2 x ¼ tablet, Repitend 4 ml – 0,4 ml. Carsil – 2 x ½ capsule daily, EXJADE – 1 tablet daily, Urinal x 5 ml daily, Vitamin D3 x 2
Emma makes steps but always and only with the help of a support. She does not control her physiological needs and wears diapers. She listens to children’s songs and fairy tales and claps with her hands. She holds a toy she has been offered but she would most often put it in her mouth without playing with it.
Emma needs monthly blood transfusions and regular consultations with a neurologist and hematologist.
