Donna’s medical diagnosis includes: Retinopathy of prematurity (ROP) stage 5, post vitrectomy condition bilaterally; secondary glaucoma. Left eye ROP stage4 Nystagmus. Delayed neuro-psychic development. Condition after low birth weight. Self-aggression. Spastic quadriparesis. Iron deficiency anaemia
Dawn was born first. Her medical diagnosis includes: cerebral palsy – spastic quadriparesis. Spastic quadriparesis. Suspected hydrocephalus with normal pressure and hypoplasia of corpus callosum. Grade 1 hypotrophy. Convergent strabismus; hypermetropia. Condition following very low birth weight.
Update July 2024: After their placement into the foster home on May 14, 2024, the girls have adjusted well and made noticeable developmental progress. They show an attachment to the foster mom and follow her instructions. One of the girls can now walk independently and is well oriented in the foster home. The other girl sits with little support. The girls now eat mashed food from a fork or spoon and chew well. They have learned to speak their first meaningful words and are also observed to repeat syllables. While there’s some jealousy between the sisters when it comes to receiving attention, they are emotionally close and hug/hold hands. Videos from July 2024 show one girl as tenacious in exploring her environment and the other as joyful when playing on the floor. The girls attend therapy twice a week and their foster mom is proactive in seeking additional services for them. They like music and singing and enjoy massage from the foster mom. They are thrilled to be playing in the inflatable pool in the backyard. Their foster mom describes them as positive children who will continue to make progress with the right interventions and lots of love.
From a family who met them in 2023
I met these twins when I visited my daughter for trip one in 10/2023. One twin was active and was able to stand holding on and cruise around her crib. She was able to climb right out of her floor crib and back in herself. It was an activity for her and she did it with great ease. She wasn’t trying to escape at any point and would just flip In and out over and over again. She seemed like what you would expect for a toddler. She stopped what she was doing when someone called her name and turned in the direction of their voice. The other sweet twin was always laying down when I saw her. Sometimes in a crib, sometimes in a seat. My daughter asked for “baby” all the time and they would put this twin in her crib with her to lay together. They said she was more “severe”. She definitely seemed more infantile. They were in a really great place where they got plenty of food and were carried around a lot by the staff there. There were 8 kids on that floor in four rooms. The twins shared a room. I believe they are now in a foster situation. They def were pretty easygoing. They had a lot of musical toys which they seemed to like. The active twin kept herself busy a lot but the quiet twin seemed to love cuddling and other kids being around her. I think some of the delays they have may be related to vision impairments. I would imagine they would do well with siblings.
