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To inquire about this child, email childinquiry@reecesrainbow.org ***
Hunter is a cheerful 10-year-old boy in need of a loving home capable of supporting him and his long-term needs. In 2018, Hunter was diagnosed with Coffin-Lowry Syndrome, a genetic disorder, with dysmorphic features including hypertelorism, depressed nasal bridge, thick lips, wide mouth, and broad tapering fingers. He also has developmental delay, profound sensorineural hearing loss, scoliosis, hyperopia and astigmatism, asthma, beta thalassemia trait, and short stature. He received a cochlear implant in his left ear in April 2020 and continues to use a hearing aid in his right ear. He is required to attend medical appointments at different specialties, including the Endocrine Clinic, Eye Clinic, Asthma Clinic, ENT, Prosthetic & Orthotic, Neurology Clinic, General Pediatrics, Hearing Aid Prescription and Spinal and Brace Clinic. His asthma has become stable in recent years and is prescribed medication if needed. He also has history of seizure but has been stable as well. Despite all of his long-term conditions, his health is generally stable and he does not take any regular medications.
Hunter is an active, pleasant, friendly and outgoing boy who always shows his smiles. He is an affectionate child who enjoys holding hands, cuddles and hugs from his familiar caregivers. Hunter currently does not have any speech; however, he can express himself by producing some vocal sounds, such as “er” or “ar” or through some simple gestures, such as pointing to things he is interested in or wants or through pictures and Quick Talker. He has received sign language training and learned to use body gestures to express himself. He can wave his hand to greet or to show refusal occasionally. Even with his limitations, Hunter shares a good relationship with the other children. He is generally calm, though he can get upset when he doesn’t get what he wants, but he is easily diverted and his frustration will resolve.
Though Hunter is slightly weaker in trunk control, shoulder stability, upper limb control, muscle tone, bilateral coordination, and motor planning, he can keep his balance while standing and walking. He can also walk up and down stairs by holding someone’s hand, run, and climb up and down as shared. In terms of fine motor skills, he has poor to fair finger strength, finger dexterity and bilateral coordination of both upper limbs. He has a fair to poor tripod and pincer grip in picking up small objects, and fair to poor performance in handwriting and manipulating scissors to cut a straight line. Being curious, Hunter likes exploring his environment and new things. He likes playing with building blocks, coloring, and watching TV and YouTube videos. He enjoys participating in activities at the orphanage.
Hunter needs a family who can help him continue in his development and who will be dedicated to his life-long needs.
