Ben is a determined and easy-going child despite his significant medical and developmental needs. He is described as having a gentle temperament and finds contentment in simple pleasures like listening to children’s songs, sleeping peacefully and engaging with his caregivers.
Ben has been diagnosed with Chromosome 2q deletion with developmental epileptic encephalopathy, and global developmental delay. His developmental age is estimated to be under 3 months. Ben also experiences visual impairment due to right eye congenital ptosis. While these conditions necessitate using a manual wheelchair and a gastrostomy feeding tube, they do not diminish his indomitable spirit. is a courageous fighter who has persistently strived for survival and shown constant improvement in his health. As of December 2023, he has successfully been weaned off oxygen therapy. Furthermore, the ward nurses report that Ben exhibits consistent progress in his motor development under the guidance of therapists. This highlights Ben’s progress in his development through appropriate stimulation. It is believed Ben will gain more opportunities to explore and develop his potential once he starts attending school. To learn more about Chromosome 2q deletion, here is one of many articles available online: GARD Rare Disease Information – Chromosome 2q deletion – National Organization for Rare Disorders (rarediseases.org)
With a loving, committed family who is open to acquiring the necessary medical knowledge, his care staff believes that Ben will receive the support he needs to continue flourishing. Ben’s gentle nature, resilience, and evident potential make him a truly special child deserving of a forever home filled with unconditional love. While some development is expected, Ben will need lifelong care from his loved ones.
A family with a home study for any country can submit for consideration of this child. If matched, the family would need to update their home study to this specific country.
