Phineas uses a wheelchair in his daily life. He also spends time in a standing frame. He enjoys smiling at people and laughing. Phineas enjoys sensory experiences with tactile or auditory input. He enjoys listening to a maraca or touching a soft stuffed animal.
Phineas
Boy, Age: 4
Country Code: E-11
Region: Europe
Primary Diagnosis: Craniofacial disorder, Deaf / HoH, Epilepsy/ seizure disorder, Genetic Condition (non-DS), Hydrocephalus
Polymalformative syndrome, with craniofacial dysmorphia; suspicion of Goldenhar Syndrome; Hydrocephaly; upper airway malformation with tracheostomy since 10/4/2021. Currently with cannula. Epilepsy. Gastrostomy. Sensory-neuro deafness – uses hearing aids.
Listed: Mar 2024
Phineas was previously listed as Phil — he is a sweet boy who was born with a polymalformative syndrome. His condition comes with needs that set him apart, and he was placed in care early on.









