Holly is a cheerful, lovely, friendly and cheeky 5-year-old girl who lights up her surroundings as a true superstar. She loves people and her medical staff adores her, often gifting her beautiful clothes. She treasures relationships as she can easily remember faces after just two meetings. Holly is learning to use alternative and augmentative communication (AAC) with the help of a tablet, where she can tap to select people she wants to see (picture available). During the social worker’s child visit, she even used gestures to request adding the worker’s face to her tablet even though it was her first-time meeting her. Despite her many medical needs, this child has shown the ability to learn and engage with her with a variety of engagement types. She is a funny girl who makes people smile with her bright personality. A picture is available of her making funny faces when the social worker was taking her pictures for the child study.
Holly is diagnosed with incomplete DiGeorge syndrome, bilateral vocal cord palsy, oropharyngeal dysphagia, gastroesophageal reflux disease (GERD), Methicillin-resistant Staphylococcus aureus (MRSA), scoliosis, global developmental delay and exotropia. She is on tracheostomy and percutaneous endoscopic gastrostomy (PEG) feeding. She has remained hospitalized since birth for her medical needs even though she is medically stable now. To learn more about DiGeorge Syndrome, visit the Mayo Clinic’s syndrome page here: DiGeorge syndrome (22q11.2 deletion syndrome) – Symptoms and causes – Mayo Clinic
As mentioned, despite Holly’s significant medical needs, she has made remarkable progress in her development over the past year. She can follow simple instructions, point to familiar objects, and use tools after observing her teacher’s demonstrations. Holly shows interest and joy while learning various play skills and can imitate appropriate play behaviors with prompting and encouragement. She consistently communicates her needs using gestures and she also has great eye contact. Additionally, she can sit independently, take a few steps without assistance, self-propel her wheelchair for short distances, and manage tasks like eating and dressing on her own. She enjoys watching cartoons and listening to music.
Despite having a tracheostomy, Holly does not require ventilator support. However, in the event of tracheostomy dislodgement, there is a risk of hypoxia and immediate tracheostomy reinsertion is necessary. She needs to be accompanied by a trained caregiver at all times. Holly has been assessed as medically fit for home care. The doctor has recommended that Holly requires a well-trained and attentive caregiver who can provide vigilant around-the-clock care, and the caregiver would need to be proficient in special care skills, including managing tracheostomy emergencies.
Holly has made great strides in the past half year and we strongly believe she will continue to make great progress in reaching her potential within a loving and fun family.
Due to the country’s matching process, families with an approved home study for any country are able to request consideration to be Holly’s parents. If matched, the family would then need to quickly update their home study and gather the dossier for the country.
